Monday, August 25, 2008

Time management

The title is a huge issue for us. Take today (or so far of it) for example. Up with the boys at 630. Get breakfast for boys, coffee for mommy and daddy. Wake girls. Hand boy duty over to them so we can get dressed. Boys decide they want to get dressed at the same time we do so as we are putting on our clothes we are also aiding them (you try dressing an autistic 2 year old that HATES shirts while only one arm and your neck is in yours). OK boys and parents are dressed. Now the girls, and if you thought the first set was insane we then have the showering, blow drying, lip gloss applying Malay of the girls getting ready.

Once we are all prepared to leave our comfort zone, Will loads Fletcher and his Mickey Mouse back pack into the Neon and I load Lauren, Aileen, and Aiden into the truck. Off to CHKD for Fletcher and the clinic on Oceana for us. Aileen's doctor filled out the wrong physical form and try outs for football start today so we have to get this done now. Quickly learn that the doctor that originally signed off on her physical is no longer there so we scramble to find someone to sign this new form. 45 minutes later we are told the doc will get to it in an hour or so. Nice. We leave to come back home where I write the budget for next month (OUCH) and get all the checks ready to mail. At 1030 Will and Fletcher still aren't out of CHKD yet and we are supposed to be in Chesapeake at 11. Will pulls up at 1040, we transfer Fletcher, leave Aileen with Aiden and off we go to Carolina mobility to get Fletcher his custom stroller. After insisting the nice man give Fletcher a ride in his wheel chair (no I am not kidding) and a screaming, head banging fit later, Fletcher is measured and ready to order his new stroller/wheel chair thingy.
Home we go and it is naps for boys and Will to work and me back to Oceana to pick up the physical. Get that, run to the NEX and the commissary, and back home I go. Will calls to let me know he is now production supervisor (Yippee). Boys wake up and I take my itty bitty 9 pound baby girl to football tryouts for middle school. Welcome to my life. Let's see what tomorrow brings.

Saturday, August 23, 2008

Looky what I found




Time to get on here and blog for a few minutes. The short and sweet version before the boys realize where I am. LOL


Aileen. Starts football tryouts on Monday and starts 6th grade on the 2nd taking all advance placement classes and 2 foreign languages (and she went for Japanese and German). We have a date on Friday with Deanna and Yvette to get pedicures and go get that perfect first day of school outfit. Jonas brothers has invaded her heart and I worry we may never find the walls in her room again.


Lauren. Has mastered the scooter and can ride for minutes now without jumping or falling off. We are very proud of her. She is also our exterminator. If there is a bug she will remove it no matter what. Did I mention how much I love this child?


Aiden. He is reverting and picking up some of Fletcher's behaviors which we really need to squash and quickly. He also has mastered the scooter and is attempting a skateboard now. ER here we come.


Fletcher. Has now been diagnosed with epilepsy on top of everything else. He will do ABA therapy 4 days a week, 3 hours a day starting the 2nd. And he will have speech and occupational therapy once a week. He finally said his first word and it was "Bubbles" That is the prettiest word I have ever heard!


Will. 1st round of orders was denied, we should find out about this cycle the first week of September. He is starting his business up so now that very pretty bachelor's degree is not just for show anymore :0)


Morgan. What to say about me? I am having an invasive procedure done on my neck next month which is completely unrelated to the Parkinson's but the procedure should help with the pain and muscle issues form that as well.


Oops I have been spotted! Here are some pics / I will try to squeeze more time on here later.

Friday, August 01, 2008

Project Lifesaver

This is a program that puts tracking devices onto autistic children, alzhiemers patients, or people with down's Syndrom. Will and I have been looking into for a few weeks because we realize that fletcher has a tendancy to wander and can open all the doors even when locked (Aiden trained him well). After last night it is no longer a discussion but a must.

Will left for the airport to pick up the girls and 10 minutes later there is a knock on my bedroom door. It is Deanna and Nate, HOLDING FLETCHER. He apparently left his room, went downstairs, undid the dead bolt (the top lock wasn't engaged so Will and the girls could get in), and walked his chubby butt out of the front door. by the grace of God, they were outside smoking and brought him in. He was standing right outside the front door, apparently looking for me as he kept signing "Mommy".

We called today and will hopefully have him enrolled in the program by the end of next week. If you know of anyone willing to sponsor an autistic child for this program, please let me know. there are plenty of families out there that need this and can't afford it. And it is tax deductable. We are working on getting sponsors now so we don't ever have to worry about these kids wandering off and ending in serious danger.

http://www.projectlifesaver.org/site/