Sunday, September 06, 2009

Is it against the law for a 12 year old to have a job?

I hope not. LOL. She had her first shift as a Junior Volunteer at the SPCA today. On her first day she was the only one to asked to stay late and she loved it. She gave me a complete tour of the facility and was showing me her favorites. She also baby-sits once a week for a sweet wonderfully adorable autistic girl down the street. Toss in managing the football team this term, playing basketball next, the one act play, followed by forensics, I am wondering if we are going to see her at all this year! Now if I could just get her to do here chores done right, I would be content to deal with the occasional smart mouth.

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Thursday, September 03, 2009

Grrrrrr!

OK I am so tired I can't even see straight and I won't be able to sleep until 8 tonight so the EEG and the MRI better find something because I don't want to do this again. Geek squad was supposed to come out this morning to fix the TV and they ordered the wrong part so now we won't have the TV until Saturday at the earliest. Never ask yourself "What else can go wrong?" Because something else will go wrong. LOL Will is taking the Petty Officer First Class exam this morning. We know that he won't advance of this first exam but please pray that he at least passes the test :0)

Wednesday, September 02, 2009

How much longer?

Please read and understand that this is just part of what my family goes through everyday. Ask my how you can help by the 9-9-09 campaign to the president, CDC, and the media. Also while you are reading this, you will notice that it jumps all over the place. It is like a conversation with an autistic child. If that child is verbal.


HOW MUCH LONGER?
WE WOKE UP TODAY
unsure of which issue to tackle first.
SHOULD WE WORK TO PAY FOR OUR TEENAGERS’ DIAPERS TODAY?
SHOULD WE GO AFTER FEDERAL LAWS
OR SHOULD WE IGNORE THE HEALTH OFFICIALS WHO SAY
OR WORRY ABOUT WHERE MILLIONS OF DISABLED ADULTS WILL LIVE
SHOULD WE SHOUT AT THE TOP OF OUR LUNGS TODAY THAT
should we try to prevent the next seizure today?
or work to keep more children from wandering off
AND DROWNING IN A LAKE?
after their parents are dead & gone?
PUNCHED, SUFFOCATED, OR LOCKED IN ROOMS AT SCHOOL?
GOOD MORNING.
TO PROTECT OUR CHILDREN FROM BEING
IT’S ALL JUST A BIG
coincidence?
or should we allow the harmful restraint & seclusion to continue?
REGRESSION FOLLOWING VACCINATIONS?
should we ignore the thousands of stories of
about the next child who will regress from
AUTISM IS TREATABLE &
OR SIMPLY NOD ALONG WITH THE MAINSTREAM DOCTORS WHO SAY WE’RE WRONG?
an over-the-top vaccination schedule?
SHOULD WE RAISE HELL TODAY
THEN AGAIN, SKYROCKETING DIVORCE RATES IN THE AUTISM COMMUNITY REALLY NEED OUR ATTENTION
OR SHOULD WE JUST LET IT HAPPEN?
or the ones who can’t stop hitting themselves? or the ones who don’t ever sleep?
SCREAM
should we worry about the children who will have violent meltdowns today?
or should we help the mother who is threatening suicide on this day?
better yet, maybe we should help the families who are bankrupt because
ALONG WITH THE FACT THAT “AUTISM” IS JUST A WORD
OR FIGHT FOR OUR CHILDREN’S THERAPY?
OR FIGHT FOR OUR CHILDREN’S RIGHTS?
OR FIGHT TO GET THEM
should we show up in washington today to yell about theZEROanswers our children have received from the billions spent on genetic research?
OR SHOULD WE WORK TO STOP THE NUMBERS THAT ARE NOW AT
GOODNIGHT.
SHOULD WE FALSELY AGREE THAT THE RISE IN RATES IS ONLY DUE TO BETTER DIAGNOSIS,WHEN WE KNOW
our kids weren’t smearing poop
30 years ago & banging their heads 30 years ago & flapping
ONLY TO GO UNNOTICED?
OR SHOULD WE WORRY TODAY ABOUT HOW THE AUTISM COMMUNITY IS OVERWHELMED &
underresourced
SHOULD WE JUST THINK ABOUT GOING TO BED TONIGHT
WE’LL WAKE UP TOMORROW TO FIND THAT SOMEONE FINALLY
A NATIONAL HEALTH CRISIS
A NATIONAL EMERGENCY
& THAT FINALLY SOMEONE IS SAYING ENOUGH IS ENOUGH,
or pay for the funeral of the father who committed suicide yesterday?
SOME GUY CAME UP WITH 70 YEARS AGO
TO DESCRIBE A NEW, RARE MENTAL CONDITION THAT WE’RE FINDING IS ACTUALLY MORE
ENVIRONMENTAL. so, should we fight to reclassify this whole-body condition today?
OUT OF THIS HELL?
& unable to point to an object 30 years ago & unable
bathe & wipe & feed themselves & stay safe 30 years ago
AND HOW THE SWINE FLU’S NONEXISTENT PANDEMIC IS RECEIVING OVERREACTION & “FAST TRACKED” FOCUS
while autism’s already-existent epidemic gets slow-tracked solutions and profound underreaction?
OR PRESIDENT OBAMA
HOPING TO GOD
IS DECLARING AUTISM
let’s get some answers, let’s give some aid
or should we just let every American eventually find out for themselves how bad it really is?
OR FIGHT FOR OUR CHILDREN’S CURE?
or the ones who can’t point to what hurts, so all they can do is
OR FIGHT FOR OUR CHILDREN’S EDUCATION?
BEFORE IT’S 1 IN 20 CHILDREN?
HOW MUCH LONGER, PRESIDENT OBAMA, DO WE HAVE BEFORE THE HOPE FOR AMERICA’S CHILDREN FADES COMPLETELY?
LET’S FIGURE THIS OUT
their hands 30 years ago & unable to speak 30 years ago
A NATIONAL EPIDEMIC?
1 IN 100 CHILDREN?
AUTISM IS PREVENTABLE
HEALTH INSURANCE DOESN’T COVER AUTISM?
HOW MUCH LONGER, PRESIDENT OBAMA,WILL WE WAKE UP OVERWHELMED BY WHICH ISSUE TO TACKLE FIRST?
KEEP ASKING HOW MUCH LONGER. VISIT NATIONALAUTISM.ORG.

Tuesday, September 01, 2009

Silance

It is almost 130 in the morning and this seems to be the only time for quite. The lamp in the projection TV went out today. This shall make life interesting since the boys will not get the TV back until Friday at the earliest. I have become the master of disaster. Maybe I should work for FEMA. I was the one who figured out the code of the blinking LED light that told us what was wrong with the TV, then I ran to Best Buy to see if they can fix it (it is still under warranty) and they referred me to Geek Squad who can't get here for 48 hours. Well no one is going to be here Thursday so we had to go with Friday. Today was a good, stressful, typical day for me. It took me 17 minutes to take my Algebra exam and I aced it, English class Ryleigh and I caused our usual havoc, and my French teacher was very complementary to my pronunciation. Then I picked up Aileen, Aiden, and Lauren to BJ's (Sam's club type place that takes coupon). The total was$650 before coupons. Final total $565! Then it was off for haircuts and getting that perfect first day outfit and shoes to match (I really need to get it through Aileen that at 5'8 she does not need stilettos or anything higher then a half inch. When we got home we grabbed Will, Ryleigh and Fletcher and went to Olive Garden for dinner. I can not tell you how well behaved my boys were. We do not go out often with all of them because Fletcher and Aiden have negative behaviors that disrupt other people and no matter how hard you try to explain, people still get mean and rude with us. Not tonight, they were perfect. Fletcher didn't throw a single thing or scream once. Aiden sat very patiently waiting on more bread sticks. The girls had awesome manners. I was dreading it and ended up so wonderfully pleasantly surprised.
Tomorrow is a short day for school but I still have a million of errands to run and housework and homework to do. Aiden starts back at River's Bend Academy tomorrow. He is excited and I am as well! I am getting incredibly tired so it is off to bed I go! Night all!